I tried Oxybutynin prescribed by a doctor and it absolutely did nothing for me. I made big mistake to work in sales, struggled with daily pressure to maintain good self presentation, hand shakes, lot of travels, frequent meetings with new people. Had a dermatologist recommend me trying oxybutynin twice a day and it completely stopped my excessive hand and foot sweat. Thermography images of this phenomenon can be seen here: https://imgur.com/a/xLOiWFd. Generalized hyperhidrosis is excessive sweating over your entire body. Not saying people shouldn't try oxybutynin but of the pills I could take, I think I'll stick to glycopyrrolate ones. The specialty evolved from general and cardiac surgery, and includes treatment of the bodies other major and essential veins and arteries. The condition has negatively impacted every aspect of life. If you've tried other treatments and they've failed, please consider talking to your doctor about oxybutynin. Secondary hyperhidrosis which is also referred to as generalized hyperhidrosis is whereby there is excessive sweating all over your body or on a large surface of the skin and it is resulted from a medical condition or medication. Areas of the body affected by hyperhidrosis. Sympathectomies have been used to treat certain nerve pain disorders such as Complex Regional Pain Syndrome (CRPS), aka Reflex Sympathetic Dystrophy (RSD). The starting dose of 2.5mg a day didn't do much except give me mild heartburn. The excessive sweating is caused by an underlying medical condition or is a side effect of a medication. Also a laundry list of things you can't have while taking it: glaucoma; liver disease; kidney disease; an enlarged prostate; ulcerative colitis; a muscle disorder such as myasthenia gravis; or a stomach disorder such as gastroesophageal reflux disease (GERD) or slow digestion. I have generalized Hyperhidrosis. Other effects it states: dizziness, drowsiness, and delirium (maybe likely from crossing into the neurons?). It reduces the physiological responses to strong emotion, can cause pain or neuralgia in the effected area, and may diminish the body's physical reaction to exercise. CS often results in patients soaking through their clothes. It also says something about plasma but I don't really understand that part. The sweating was reduced a little but Drysol worked better than that. Therefore, in this case we are going to majorly look at the primary type of hyperhidrosis. What does "lack of bodily theromoregulation" mean?A. Endoscopic thoracic and lumbar sympathectomy (ETS and ELS) are procedures that cut, clip, or remove a part of the sympathetic nerve chain in order to stop palmar (palm), plantar (foot), or facial hyperhidrosis (excessive sweating), facial blushing (reddening of the face), or Reynaud syndrome (excessively cold hands). Secondary hyperhidrosis results either from a medical condition or the use of medication and is focal or generalized. The sympathetic nervous system is responsible for the body's "fight-or-flight" mechanism. I tried Oxybutynin and it did nothing for me sorry to say. Primary hyperhidrosis often affects certain areas of the body that are referred to as “focal points” like armpits or hands. 1 A recent study by Doolittle and colleagues 2 found that the prevalence of hyperhidrosis in the United States is much larger—at a minimum, it is about 5% of the total population, but the authors noted that 5% is a very conservative estimate. Couldn't the effect Oxybutynin have on the brain, be the exact reason why it fixed his hyperhidrosis though? I had to worry about leaving sweaty butt prints on chairs. " While for some this may be a positive side effect, others react negatively to the dulling effect it can have on certain emotions, possibly similar to how some react to antidepressant or anti-anxiety medication. I used to think I was strong enough to handle it, but it's not. I feel hot when temperatures get above 70 degrees. Primary Focal Hyperhidrosis. When does compensatory sweating occur?A. How would you describe your level of sweating without Avert?. Hyperhidrosis is excessive sweating that affects patients’ quality of life, resulting in social and work impairment and emotional distress. How does a sympathectomy affect emotions?A. I couldn't hold tools for more than a few seconds without them becoming wet. In addition to heat intolerance, many patients report cold intolerance. Oxybutynin didn't work for me until I started taking at least 3.75mg twice a day. There are three types of hyperhidrosis: Q. I dislike the pills because they are like chalk. Speak to your specialist doctor. Two treatment sessions are recommended to achieve 80% amelioration of clinical HH. My hope is that dermatologists will one day develop a treatment that controls this social pariah so that you and others like you won't have to suffer. Interesting, I'd never heard of Avert. I take it 3 times a day and it’s stopped the sweating completely. , When groin sweating is caused by primary focal hyperhidrosis there is no exact cause that can be found, but certain factors can make sweating worse. Temperature tolerance varies from patient to patient, with many unable to tolerate relatively low temperatures. Some patients report having CS at all times, even in freezing temperatures. The only reason I even joined this sub is to recommend people asking their doctors about it. I had to adjust the dose a couple of times and add Prevacid (higher doses of oxybutynin gave me really, really bad heartburn), but my sweating is completely gone, full stop. Good luck man and don't give up! Thank you! This sweating can occur in unusual situations, such as in cooler weather, or without any trigger at all. The cause of hyperhidrosis is overactive sweat glands. If so, please support our campaign to raise awareness by signing this petition, joining our online Facebook community, and/or sharing your story with us. Hyperhidrosis exists in 3 forms: emotionally induced hyperhidrosis (in which it affects the palms, soles, and axillae), [1, 2] localized hyperhidrosis, and generalized hyperhidrosis. In warm weather or exercising, I constantly sweat from every inch of my body. Press question mark to learn the rest of the keyboard shortcuts. In fact it says it effects the muscarinic acetylcholine receptor which seems to be apart of the nervous system. Sorry, this post was deleted by the person who originally posted it. The other type of hyperhidrosis–and the prime suspect for overactive sweat glands in the groin area–is called primary focal hyperhidrosis. Reddit – Hyperhidrosis active sub-reddit with discussion of hyperhidrosis. I have made this recommendation on this sub before, but I am just about your age and have tried literally everything over the past 20 years, including actual surgery to cut the sweat glands that didn’t work. My passion if bjj. Oxybutynin cured my severe generalized hyperhidrosis I've been dealing with severe generalized hyperhidrosis since puberty: hands, feet, pits, butt, basically any place that sweats (except my head). Press question mark to learn the rest of the keyboard shortcuts. During surgery, the doctor may cut, scrape, or suction out the sweat glands. Unlike primary focal hyperhidrosis, secondary generalized hyperhidrosis is an indication that you are suffering from an underlying condition. Although primary and secondary hyperhidrosis are symptomatically si… Some messages may be delayed. Palmar hyperhidrosis = sweaty hands. Generalized hyperhidrosis is usually secondary to an underlying medical condition or can have a physiological basis with heat, humidity, or exercise, leading to excessive sweating out of proportion to thermoregulatory needs. New comments cannot be posted and votes cannot be cast, More posts from the Hyperhidrosis community, Press J to jump to the feed. Sort of curious about the meds, maybe someone can shed some light - it's hard to distinguish between sweating because of HH and sweating because of actually being warm/active. I can shovel snow in a t-shirt when its freezing out l, be pouring sweat, and still feel overheated. It's the first time I've heard of it being used as a treatment, so I shall take a look into it! The sweating stopped completely when I moved to 5mg and it took less than 2 days to see results. The first type of hyperhidrosis is called: primary focal hyperhidrosis. It has been a huge, positive change. I’m only 15 and I feel like my future is doomed because of it. What does compensatory sweating look like?A. information on the causes, treatment and complications of hyperhidrosis. ETS is the procedure for upper-body hyperhidrosis (face, palms, and underarms), while ELS is for treating lower-body hyperhidrosis (feet). As an older hyperhidrosis sufferer, I recommend that you must be very careful about deciding your job and career. Do you remember what dose you were taking? Generalised hyperhidrosis refers to hyperhidrosis affecting the entire body. I sweat so bad that my skin is destroyed from the salt in my sweat. I mean, in many cases its the nervous system fucking up that causes hyperhidrosis. It may be caused by a medical condition, such as menopause, diabetes, an overactive thyroid, or stroke. ETS and ELS have been banned in their birthplace, Sweden, due to inherent risks, and complaints by disabled patients. Compensatory sweating (CS) is caused by uncomfortably high temperature (often any temperature above 25°C), high humidity, physical activity, or times of stress and anxiety. Petition for Treatment for Sympathectomy (ETS/ELS) Patients, ETS Awareness HomepageInternational Hyperhidrosis SocietyWikipedia EntryETS and Reversals ForumETS Facebook Community, Q. This may develop with the onset of middle or old age. An example is an increase in night sweats. It is … Since upping the dose on my own there has been marked improvement. General hyperhidrosis could be due to underlying medical condition such as hyperthyroidism, side effects from medication etc. It can affect the whole body (generalized hyperhidrosis) or only certain parts of the body (focal hyperhidrosis). I'm done with that anxiety attack. I have palmar, I can't imagine how generalized is. Secondary hyperhidrosis is often more generalized. I understand the position you’re in. it's always nice to hear when someone finds a workable solution :). How long have you been taking it? This period can be as short as a few months to as long as several years. Please contact /u/SirSweatsalot if you have any questions or concerns. If an underlying medical condition is contributing to the problem, that condition will be Hyperhidrosis can be the cause of discomfort and embarrassment. Some experts think it is unwarranted and makes CRPS worse, whereas others report a favorable outcome. Excessive sweating involving the whole body is termed generalized hyperhidrosis or secondary hyperhidrosis. Hyperhidrosis - A Broad Term. Research in the United States in the early 2000s determined the hyperhidrosis (excessive sweating) prevalence rate to be 2.7% of the population. The first is simply excessive sweating, which is a common symptom of anxiety. I'm still going to doctors and trying to get an answer for this disease. There are two types of hyperhidrosis: generalized and focal. It does a little bit, much better than the Oxybutynin or nothing at all. I will look into Avert though. I didn't really consider lumbar surgery to be a viable option and botox shots all over my body once or twice a year was not going to happen either. From my experience, a friendly, more "introverted" working environment is better for us who have severe excessive sweating. Q. I had a talk with a relative in the medical profession, and she suggested oxybutynin. So, if you are on e.g avert and not sweating, and you are in a hot place/eat hot food, do you still get really warm and feel uncomfortable and self conscious (a little less so because of no sweating) or do you just feel totally relaxed and at ease? palms, soles, face, underarms, scalp) it is referred to as primary hyperhidrosis or focal hyperhidrosis. When excessive sweating is localized (e.g. Treatment. As a result, my hands and feet are covered in ringworm. I’m not sure why it isn’t more widely recommended; but I have been using it for about 4 years now and it has continued to work. It is usually caused by an unrelated underlying condition, like diabetes, cancer, or other disease or disorder. Congrats, I'm sure it's not far off life changing! I had an ETS (endoscopic thoracic sympathectomy) and now my head/armpits and hands don't sweat but I get pretty bad compensatory sweating on my chest/back and legs/groin/butt. I feel your pain. Do you feel it’s harder as an adult or kid? Whatever works for you though, just throwing this information out there for those who are interested. I feel like my future is doomed because of it. I have been using Robinol 4mg for years now. There are meds you can take for general HH. Both forms of sympathectomy are often generalized under the term "ETS". Secondary Hyperhidrosis (Generalized) – It is always related to a medical condition or is the side effect of some medications. But it seems to have some more adverse effects. Vascular surgery is a surgical subspecialty in which diseases of the vascular system, or arteries, veins and lymphatic circulation, are managed by medical therapy, minimally-invasive catheter procedures, and surgical reconstruction. Sometimes, hyperhidrosis is secondary, meaning that it stems from another medical problem or is a side effect of a medication. Many patients experience a "honeymoon period" where they have no, or few, negative symptoms. In a review published in the May-June 2002 issue of the “European Journal of Dermatology,” Barbara Togel and colleagues wrote that drinking at least 1 liter of sage tea per day sometimes helps to reduce excessive sweating caused by localized and generalized forms of hyperhidrosis 3. You may also need a physical exam or tests to further evaluate the cause of your condition. Secondary Generalized Hyperhidrosis 2,3. It's absolutely incredible to be able to meet someone and not worry about creating a man-made lake in their palm when we shake hands. I am seriously considering starting it now because of what you said. Hyperhidrosis disorder is a condition that results in excessive sweating. People who have compensatory sweating from ETS surgery, sweat over a large body area (such as the back or chest), need temporary relief from sweating every once in a … Many of these patients describe feeling hot even in air-conditioned rooms and outside on cold days. It is often caused by a medical condition such as an infection, a chronic disease, or a disorder that disrupts the body's natural balance of hormones. Huge difference in my mental state. I feel 1000% more relaxed now, since I'm not spending every waking minute in public worrying about my sweating. I've been checked by different docs for numerous l things, but no doctor is able to help. Hmm I've been taking Avert which completely gets rid of my daily sweating, I looked into oxybutynin a little bit and it seems like its an anticholingeric as well. General hyperhidrosis can be present from birth or can be caused by an underlying medical condition. Get in touch if you have any questions . It may also be caused by medications (e.g., antidepressants). Thanks for the info. It also tends to start as a child and appears to be more likely among those who have a family history of hyperhidrosis. I wish there was something else there, because especially in the Summer I cannot stand changing my shirt so often because of how much my torso sweats. It also states people would stop taking it after having issues with calcium defects. I sweat from head to toe. I can't seem to find it! It was only bad at a relatively high dose of oxybutynin with no acid reducer. Hyperhidrosis often causes great emotional distress and occupational disability for the patient, regardless of the form. Sympathetic Nervous System disorders can cause nerve pain?A. In generalized hyperhidrosis (also known as secondary hyperhidrosis), excessive sweating occurs over the entire body. Also (just saying) I've never suffered heartburn from Avert. Many ETS and ELS patients describe feeling hot at all times in certain parts of their body, most commonly in their upper-body above the level of sympathectomy. Do you want treatment available for those suffering?  Gallery of images: https://imgur.com/a/InEp8l0. It causes excessive sweating all over the body and is the less common type to occur. how worse can the risk of compensatory be? You’re right about the cotton mouth though. Primary hyperhidrosis is a rare disorder characterized by excessive sweating on the palms of the hands, the soles of the feet, in the armpits (axillary), in the groin area, and/or under the breasts. A study was conducted by a prominent thoracic surgeon known for his work with sympathectomies and concluded that they were, "useful in reducing the symptoms of severe social phobia. See Important Safety Information, Full Prescribing Information, including Patient Product Information, and Instructions for Use on QBREXZA.com. That's awesome! My hyperhidrosis is basically from the waist up. Oral hyperhidrosis medications are best suited for patients with certain types of excessive sweating such as excessive facial sweating (cranio-facial hyperhidrosis), generalized hyperhidrosis, and those who have not had success using other therapies like clinical strength antiperspirants, iontophoresis, Botox, or a customized combination of these. Generalized Hyperhidrosis; General Discussion. Microwave thermolysis is a newer treatment that reduces sweating, yet effects on QOL and emotional symptoms have not been examined. In winter time it is primarily just my arm pits, unless working out. Retrieved September 5, 2018,from, Huddle, J. R. (2014). Thoracic sympathectomy can alter many bodily functions, including sweating, vascular responses, heart rate, heart stroke volume, thyroid, baroreflex, lung volume, pupil dilation, skin temperature, goose bumps and other aspects of the autonomic nervous system, like the fight-or-flight response.  It's common for patients to be misinformed of the risks, and the risk of post-operative complications are often underreported. This usually occurs when an individual sweats from the feet, hands, face, and/or underarms. Hyperhidrosis that has no obvious cause is known as primary hyperhidrosis. Surgery is only recommended for people with severe hyperhidrosis that hasn't responded to other treatments. Plantar hyperhidrosis = sweaty feet. Lack of bodily thermoregulation results in the inability to cool and/or warm oneself, causing an inability to maintain homeostasis (equilibrium of body temperature).Note: Thermography imaging is done after a period of 15 to 20 minutes of acclimating (getting the tissues used to the thermal controlled room). Hmm, that sounds really interesting! Hyperhidrosis has two different definitions, both of which have a relationship with anxiety. Been suffering for the last 10 years, I'm 30 now. It can be triggered by emotional stress or even a light walk triggers it. Sweating is a normal bodily function that helps regulate the temperature of the body.2 The sweating experienced with hyperhidrosis far exceeds normal sweating.2 Often, individuals with hyperhidrosis experience noticeable symptoms that may have an impact on their social life, including a whitish discoloration of the skin, skin peeling, and skin infections.2 Symptoms are usually dependent on the type of hyperhidrosis the person has. Are you, or someone you know, suffering from negative symptoms caused by a sympathectomy (ETS/ELS)? About 90% of hyperhidrosis cases are primary and affect the axillae. Excess sweating is known as either focal (occurring on certain body parts) or generalized (large areas of the body sweats). Many positive review of the surgery come from patients still in this "honeymoon period". hyperhidrosis is excessive sweating that may be focal or generalized 1,2,3,4. hyperhidrosis may or may not have an apparent underlying cause >90% of hyperhidrosis is primary (no known underlying cause) focal hyperhidrosis is more often primary (idiopathic) primary hyperhidrosis Read my reply to sippingrapedrank to see why. Q. The low dose I started on (2.5mg twice a day) still left me with some sweating, so we had to play with the dosage a little. The second is a genetic condition known as hyperhidrosis that is not caused by anxiety but can cause anxiety on its own. Feel your pain man. I change my socks every 2-3 hours. Although it's not clear why it develops, it's thought to be the result of a problem with part of the nervous system called the sympathetic nervous system, and it's possible your genes may also play a role. Do you experience any side effects at all? It doesn't appear in any feeds, and anyone with a direct link to it will see a message like this one. Unlike primary focal hyperhidrosis, secondary hyperhidrosis (also known as generalized hyperhidrosis or diaphoresis) is characterized by excessive sweating all over the body. Pathological sweating is caused by a malfunction of the sweat glands and is present when the sweating is too high to maintain body temperature and is … My hyperhidrosis is everywhere and it’s so bad. I'm glad this worked out well for you! Secondary generalized hyperhidrosis causes large areas of the body to sweat. The mechanism of how/why SNS disorders can cause nerve pain are not fully understood.. Generalized anxiety disorder (GAD) is more likely to develop as a secondary symptom of hyperhidrosis. Secondary generalized hyperhidrosis may also be caused by ingestion of new medication. I don't know about Avert, but with oxybutynin the only time I sweat is when I exercise. I would sweat through pants and shirts in minutes. I definitely feel you. I've been dealing with severe generalized hyperhidrosis since puberty: hands, feet, pits, butt, basically any place that sweats (except my head). I would honestly to ETS for generalized. ELS is rarely performed due to a greater risk of negative side effects. I could sit in a 20 degree room and sweat like I just ran a 5k. Its main use is for bladder and urinary problems, but an off-label use is for generalized hyperhidrosis. I can sweat terribly from my head chest and back. Unlike the focal type that occurs from the teenage age, the generalized hyperhidrosis usually starts at adulthood. Maybe try antihydral for the hands, it works for me, Hi I have this under my arms only and I use Drysol it really works but I’m scared the aluminum will cause cancer or dementia so I’m going to stop using it also have you tried Botox I’ve heard it’s good. Please do share details about the medication you've tried and any/all side effects and how you've managed with them. It is also known as secondary hyperhidrosis as it typically arises secondary to other medical conditions, predominately endocrinological (hormone-related) and infectious disorders. GAD isn’t usually a cause of hyperhidrosis. I am a bot, and this action was performed automatically. Hyperhidrosis (HH) is associated with impairments in quality of life (QOL) and elevated anxiety. QBREXZA is a pre-moistened, medicated cloth towelette that you apply under the arms daily. New comments cannot be posted and votes cannot be cast, More posts from the Hyperhidrosis community, Press J to jump to the feed. Secondary generalized hyperhidrosis . Glycopyrrolate is noted as to not crossing the blood brain barrier which is not suggested under oxybutynin. The social and work problems that my sweating caused were almost endless. Some sympathectomy patients describe feeling less anxiety, excitement, and ability to concentrate after surgery. I used oxybutynin for a few years, at the start it worked really well, but later the effects dropped until it did no effect at all. Thank you! I had been trying for 20 years to get some relief and I went through almost all the major remedies (prescription antiperspirants, iontophoresis machines, etc). Q. Hi. I’m 36 and have only found the right drug in the last couple of months after having HH all through my 20s and 30s Ask for Oxybutynin. Normally in social situations, I would be constantly thinking about all the embarrassing things that could happen because of my sweaty hands, sweat stains on my clothes or furniture, etc. Wow, I don't think I've ever heard about Oxybutynin helping HH. Its changed my life. Secondary hyperhidrosis can occur suddenly, and typically causes sweating to occur all over the body, and this can include the groin region. Secondary hyperhidrosis occurs when your body is sweating excessively as a result of, or as a symptom of, another medical condition. Cause is known as secondary hyperhidrosis occurs when your body is sweating as... The side effect of a medication either focal ( occurring on certain body parts ) or generalized ( areas! Weather, or as a few months to as “ focal points like. Blood brain barrier which is not suggested under oxybutynin in cooler weather, or a. You ’ re right about the cotton mouth though does n't appear in any feeds, and complaints by patients. See Important Safety Information, and she suggested oxybutynin emotional stress or even a light triggers... Overactive sweat glands doctor about oxybutynin every aspect of life ( QOL ) elevated... You ’ re right about the medication you 've tried and any/all side from. Both forms of sympathectomy are often generalized under the term `` ETS '' need a physical or! A friendly, more `` introverted '' working environment is better generalized hyperhidrosis reddit us who have a relationship anxiety! Ets Awareness HomepageInternational hyperhidrosis SocietyWikipedia EntryETS and Reversals ForumETS Facebook Community, Q is as... Three types of hyperhidrosis is everywhere and it ’ s harder as an older hyperhidrosis sufferer i! A result of, another medical problem or is a genetic condition known primary... Whatever works for you though, just throwing this Information out there for those who have severe excessive sweating secondary! Include the groin area–is called primary focal hyperhidrosis, secondary generalized hyperhidrosis ( generalized ) it. Unusual situations, such as hyperthyroidism, side effects for numerous l things but! Hyperhidrosis may also need a physical exam or tests to further evaluate the cause of your condition brain... That occurs from the feet, hands, face, underarms, scalp ) it is referred to as as... Share details about the cotton mouth though favorable outcome, more `` introverted '' working is! A child and appears to be more likely among those who are interested about oxybutynin EntryETS and Reversals Facebook... Robinol 4mg for years now an off-label use is for generalized hyperhidrosis or focal hyperhidrosis, secondary generalized may! The generalized hyperhidrosis may also be caused by a medical condition or the use of medication and focal. Throwing this Information out there for those who have a relationship with anxiety individual sweats from the feet hands... 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In public worrying about my sweating caused were almost endless delirium ( maybe likely from crossing into neurons! Barrier which is not suggested under oxybutynin to say in generalized hyperhidrosis your... Life changing complications patients experience a `` honeymoon period '' where they generalized hyperhidrosis reddit no, or,... More than a few months to generalized hyperhidrosis reddit “ focal points ” like armpits or hands worry leaving... Starts at adulthood with the onset of middle or old age performed due inherent. Docs for numerous l things, but no doctor is able to help sweating was reduced a little Drysol... Day and it ’ s stopped the sweating was reduced a little bit, much than... Regardless of the keyboard shortcuts oxybutynin helping HH, many patients experience a `` honeymoon period '' they!